Beyond the 'label' of a girl with a brain disease is a complex and vibrant individual, full of dreams and aspirations. While this rare condition undeniably plays a role in my narrative, I must remember that it doesn't define the entirety of my identity.
Most would not know I have a brian disease, and why would they? On surface level I look healthy, I guess it is a silver lining the intense fatigue, migraines and anxiety are invisible. Whipping out my fancy tablet crusher, that looks like a rather weird pepper grinder, is the only indication that this seemingly healthy looking person, is actually not so healthy.
Beyond the regimen of 42 tablets a day, is a girl with passions, talents, with an intricate story just waiting to unfold. Finding a balance between the daily challenges and the desire to be seen beyond those pills is a perpetual struggle. The isolation intensifies when despite the insane level (and always appreciated) of support from my incredible incredible circle of family and friends, the depth of this rare disease will be never fully be relatable.
Each tablet, whilst essential for managing the condition, serves as a regular reminder of an internal challenge. Yet, I do try to remember that strength and resilience coexist with vulnerability.
Being more than a girl with a brain condition means acknowledging all victories, large and small. It includes my ability to pursue dreams, develop my talents, and share a story that goes beyond my health condition. In a world that often categorises people, embracing the complexity of living with this condition affirms my individuality, resilience and the diverse aspects of human experience.
Being more than a girl with an illness is a celebration of victories achieved beyond medical intricacies. For me, it is a testament to the strength that has propelled women that came before me, fostering growth, and embracing life's twists and turns.
On this International Women's Day, asserting someone’s identity beyond a limitation is an act of empowerment. Embracing the mix between vulnerability and resilience, forms an integral part of someone's story.
On this International Women's Day, asserting your identity beyond any limitation is an act of empowerment. Embracing both vulnerability and resilience is a fundamental part of your personal narrative. Optimism isn't just about navigating the complexities of daily struggles; it's about leading a life rich with personal experiences, aspirations, and the strength that comes from facing challenges directly.
I guess the whole reason for posting this is to not only hold myself accountable by remembering the above, but to also let other women know that whether or not they feel pressured to fit into a singular box, this International Women's Day is an opportunity to stand tall not only as an individual, but as a collective force - dynamic, powerful women, shaping narratives filled with strength, resilience and undeniable courage.
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